Saturday 26 October 2019

Reaction of My Doctor

At first, I did not go to a doctor immediately, but I did after a while, to get some help in how to cope with the manifold issues.
My first attempt ended rather strange, when the doctor just told me: "It is the age. I can't eat everything anymore either. Think about you getting older. You are not 20 any more."
Very helpful and not to the point. He completely ignored my story, that I could tell exactly when my issues had started. It was not age that caused my issues (and I am of middle age, not senile, at least as far as I know).
Well, I went home with no information at all.

My next attempt was to call a medical hotline advertised by my insurance company. There, it took a while to get someone on the line, as the direct hotline did not answer, but asked, if they could call me back when having a specialist on the line.
That was a good sign, I thought at the time. They must know something.
But the actual result of the talk was the more devastating.
The doctor right at the beginning told me, that he could recommend, for me to not eat anything with sugar.
Fine! That idea had never occurred to me, not when I started my request for information with asking for help with a severe fructose intolerance (and household sugar is 50% fructose, so that includes all kinds of sugar anyway). So to avoid sugar is a question if you want to survive rather than a question of choice.
(It is just much easier said than done.)

When I asked for more information, what could be done about it, he had no answer and explained a very simplistic model of cranes in the intestines transporting sugar through the walls of the intestines. A model so simplistic and even false in the assumption of a vehicle transporting sugar through the walls, that the late medical theories no longer even support it.

When I asked for e.g. help groups or even self-help information, he could not help me.
When I asked what food he could recommend not containing any sugar, he had no answer at all.
So I told him that even I by now knew more about what to avoid and what to eat, than he seems to do.
That got him very angry and he started to shout at me and list all his long years of experience and excellence. Having the intolerance with really painful reactions, I had not the least patience for a doctor whose only solution was, 'don't eat anything with sugar', while not even being able to name a single food which did not contain sugar and than having the audacity to shout at me.

Still, his sole information given, that I should not eat anything with sugar, certainly needed a long professional career to find out. I made that connection after four days, when the symptoms of my stomach bug did not cease, but only got worse.

You would now presume, that I had given up on doctors by now. But I was brave enough to try again.
I went to my doctor, because I have a constant cough that I can't get rid of - and in my opinion is connected to the fructose intolerance.
The doctor the first time gave me some medication against heartburn, because my lungs seemed not to be the cause of the coughing.
The result was, that my stomach protested the medication - which had no positive result whatsoever on me and my cough - and I had to slowly begin to restore my stomach back to health for over one month.

But still, as the cough is really annoying and heavy, I tried once again some time later, telling my doctor about the bad reaction to the heartburn medication.

The doctor the second time sent me to get an x-ray of the lung area. The result was, that I have an anormal amount of air in the stomach area. But as that is not a medically known issue or symptom, he could not do anything about it.
But the air most likely stimulates the diaphragm and consequently causes the coughing.
Against the fructose- and sugar reactions, he clearly stated that the medicine has no solution here. (Fortunately, he did not send me to a fructose test, as some clinics advertise. But that is not recommended from a medical standpoint and would only cause me pain for days, when the result is clear anyway.)

As the medicine had no solution here, the doctor was kind enough to think about a homeopathic solution and came up with pills containing peppermint- and caraway seed oil. The concept looked good, but the homeopathic pills contained sorbitol as part of the pills and that had very unpleasant effects on me. So I definitely can't recommend that to anyone. When the bleeding finally stopped, I swore to never try anything with any kind of sugar or sugar-substitute ever again.

So now, after all this attempts to find a medical solution, I have none and am back with self-testing what I can eat and what is better or worse and checking what I can tolerate once, repeatedly or indefinitely.


Thursday 24 October 2019

How I Acquired Fructose-Intolerance or Malabsorption

My discovery that I could no longer eat or drink anything containing even a tiny bit of fructose, was a sudden and hard one.
After knowing for a while that I could not eat all fruit with ease, but had to avoid some, a certain event turned my world of careful eating upside down.
I had received Christmas cookies from a friend, who was aware of my careful eating procedures. So I had not expected, to receive cookies from her, which entirely replaced the sugar with fructose.

The consequence was, that I became so ill, that I thought I would die and all attempts to get rid of this unprecedented and evil 'stomach bug', which I had thought it to be at first and which in the short period of just 1 1/2 weeks cost me 20 pounds of weight, were in vane.
My stomach ached so heavily, that I could not even place a hand on it and when I tried to do something for my fitness and attempted to lie down on the floor to exercise, I could not even get back up again, much less do any exercises, because my entire stomach musculature had stopped working.
I crawled sideways, dragging my body up by grasping my bed-frame and heaving the rest of my body up with the efforts of my arms and legs. The entire musculature in between had ceased to cooperate, but one day later came back alive with excruciating pain.
But at that time at least, I had already figured out, that the cause for my illness was not a flue or normal food poisoning, but instead the presence of fructose.

Since then, even tiny amounts of fructose or sugar are pure poison to me.
So the process started, in which I had to learn, what ingredients contained which amount of sugar. And believe me if I say, the ingredients list on the food packages is mostly not very helpful in this endeavor.

So the following months were stony and full of errors and loosing weight more and more.
Because eating sugar for me is not a way to gain weight, but the fastest way to loose it.